Foundation

According to HuntersHope.com, medical care for children with Krabbe Leukodystrophy has cost families in excess of $700,000/year. In the last 6 weeks alone, Reesa has had multiple appointments with the pediatrician, pediatric neurologist, GI doctor, ENT, pulminologist, physical, occupational and speech therapists, 3 hospital stays, an MRI, GI X-ray, endoscopy, colonoscopy, bronchoscopy, barium swallow studies, genetic testing, surgery to place a g-tube and fundoplacation, in-home machines for feeding and mucus suction, and this is only the beginning.

Although health insurance covers a portion of Baby Reesa’s medical costs, it does not cover all. If you would like to help offset some of Baby Reesa’s medical and care expenses then please feel free to donate clicking the below link.

Sean and Jamie plan on setting up a Foundation in Baby Reesa’s name to help future families affected by Krabbe Disease and other Leukodystrophies. Any donations that are not used directly for Baby Reesa’s care will be set aside for this purpose.



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To Send Checks Or To Contact Sean, Jamie and Reesa:

Reesa Stutzman
11147 E. Laurel Lane
Scottsdale, AZ 85259
babyreesafoundation@gmail.com

Useful Links

Hunters Hope Foundation
United Leukodystrophy Foundation  
Dr. Maria Escolar (NDRD)

Other Krabbe Kids

EmmaDaniels.com
KarisAlmy.com
LifeWithLOL.com
PeaceLoveAndTrevor.com