According to, medical care for children with Krabbe Leukodystrophy has cost families in excess of $700,000/year. In the last 6 weeks alone, Reesa has had multiple appointments with the pediatrician, pediatric neurologist, GI doctor, ENT, pulminologist, physical, occupational and speech therapists, 3 hospital stays, an MRI, GI X-ray, endoscopy, colonoscopy, bronchoscopy, barium swallow studies, genetic testing, surgery to place a g-tube and fundoplacation, in-home machines for feeding and mucus suction, and this is only the beginning.

Sean and Jamie have set up a Foundation in Baby Reesa’s name to help future families affected by Krabbe Disease and other Leukodystrophies. All donations go towards this cause.

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To Send Checks Or To Contact Sean, Jamie and Reesa:

Baby Reesa Foundation
10115 E Bell Rd, Ste. 107-300
Scottsdale, AZ 85260

Useful Links

Hunters Hope Foundation
United Leukodystrophy Foundation  
Dr. Maria Escolar (NDRD)

Other Krabbe Kids