This week we took Reesa to the Arizona Governor's office to meet with the Health Policy Advisor for Governor Brewer. We discussed Reesa's story, Krabbe disease and newborn screening. Our goal is to have Krabbe added to the newborn screening panel in the state of Arizona. Currently 4 states have passed legislation to screen newborn's for Krabbe and 2 states are actively screening. Arizona currently screens newborns for 28 diseases. That is the lowest in the nation! As a comparison Indiana, Iowa, Maryland, Michigan, Minnesota, Missouri, New Jersey, New York, North Dakota, South Dakota, Tennessee and D.C. all test for 50 or more diseases. If you'd like to learn more about newborn screening and how it has saved lives of babies just like Reesa, please visit: Hunter’s Hope - Newborn Screening.
We also took a tour of the Governor's actual office and met some her staff. It was pretty cool and, of course, everyone loved Baby Reesa!