Monday, June 4, 2012

Baby Reesa – Health Update

In the last couple of weeks Reesa’s disposition has changed quite a bit.  We knew this would happen as the disease progressed but the reality of the situation has made us all sad and fearful for what the future holds.  Just a few weeks ago Reesa could track objects and people from across the room.  She would turn her head and look if you made a noise.  She seems to have lost this ability as she just stares into space and won’t/can’t follow you with her eyes.  Reesa is also slowly losing her ability to laugh and smile.  As late as a month ago she would laugh loudly at almost anything and always had a big smile on her face. Now her laughs are rare and have dwindled to tiny growls and her smiles are fading.  It’s amazing how much even the slightest smile can brighten our day.  Reesa’s saliva secretions have been increasing as well. Due to the risk of aspiration (pneumonia) we have to use a suction machine to clean out her mouth 5-10 times per hour.  We can no longer leave Reesa in the car seat without someone sitting in the back with her.  While in this position she needs to be suctioned frequently or she starts to choke on her saliva. Despite these latest developments, with some adjustments to her medication, Reesa has been comfortable and happy.

Reesa at 6 months

Reesa at 10 months

75 comments:

  1. Thank you so much for updating. I have been checking frequently to see if you had posted any updates. My daughter and Reesa were born two days apart so y'all have been heavily in my prayers. Reesa is gorgeous. Such a beautiful angel baby. Continued prayers for your family and Reesa as you soak up her love every day.

    Andrea Fretts

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  2. Reesa is such a sweet little angel. It breaks my heart to see her and you guys have to go through this. You are blessed to have this time together as such an incredible family. May God bless you with plenty more of her sweet smiles and love. We love her so much and pray for you all several times a day.

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  3. You have such a beautiful little girl. You guys are in our prayers. God gave Reesa two very loving parents.

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  4. She is such a beautiful baby. It's so sad to see such a wonderful family have to go through this tragic disease. You are an amazing family and I feel lucky to have known such loving people. Reesa is truly a living angel now and always. God bless all of you! I hope and pray that He lets her beautiful smile shine on you at least once each day. She is truly one of the most beautiful babies I have ever seen.

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  5. Amber TillinghastJune 5, 2012 at 1:49 PM

    You and your family continue to be in my prayers . As always your strength and ability to persevere and share this with us is inspiring and beautiful . Lots of love

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  6. Jamie Sean and Reesa,
    You are all in my thoughts and prayers daily. If anyone ever questions what an Angel looks like take a look at Baby Girl Reesa. She will light up your life.

    MonaLisa H.

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  7. Reesa is the cutest baby girl! You two are THE best parents a girl could have and she is lucky to have such devoted and loving support. You two are amazing souls and I am so inspired by how positive and brave both of you are together. Sending my prayers, good vibes, and love, Always.

    Alex

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  8. Thanks for the updates on Reesa, we think of you all everyday. Heartbreaking.
    Wayne and Marlene

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  9. I appreciate you sharing your precious baby with us. I pray for God's presence in your life and little Reesa's. I am in tears, I know you are so strong because of His presence in your life. Enjoy every minute you have been blessed to be with her.
    ~Tammy

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  10. Cannot tell you how amazing this is. I cannot wait until July 19th to come out and show my support in this. Its amazing how much Skip is able to do for your family. I will be the first to call and get my tickets for this fundraiser! I hope I get the chance to meet such an amazing family.

    Anthony

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  11. She is such a amazing beautiful little angel. She reminds me of my grandbaby that had heart issues and lost her 5yrs ago but that was the best 3 1/2 months of my life. Treasure every smile because she will always be with you. I think God needs the most perfect babies ever. God bless you and my family's prayers are with you.

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  12. This breaks my heart Jamie. Thinking and praying for Baby Ressa and for God to give you and Sean strength.
    xoxo,
    Sheri McKenna

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  13. Dear Reesa ( & Family ) - It aint over til it's over.! below is a list of Natural Health options that may help your body to fight off the intruding toxins that may be in you. 1) [ Dr. Deagle's site at (www.nutrimedical.com ) ] - Malinarest is one of his products 2) The Power Hour [ www.,thepowerhour.com ] - offers a growing list of Natural Alternatives . such as Frankincense Oil & Myrrh Oil ( use by a nurse to reverse stroke effects. - upliftdarace_144@yahoo.com

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  14. *** Sorry the 1st attempt to post had a spelling error - the word is Malignarest ******

    Dear Reesa ( & Family ) - It aint over til it's over.!
    below is a list of Natural Health options that may help your body to fight off the intruding toxins that may be in you. 1) [ Dr. Deagle's site at (www.nutrimedical.com ) ] - Malinarest is one of his products 2) The Power Hour [ www.,thepowerhour.com ] - offers a growing list of Natural Alternatives . such as Frankincense Oil & Myrrh Oil ( use by a nurse to reverse stroke effects. -
    { I have a 300 + page file i can send via email.]
    George-Harvey (Ghana Gharvey)
    upliftdarace_144@yahoo.com

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  15. Thank you again for sharing your photos! So cute and beautiful!

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  16. Breaks my heart, truly. As a mom and a medical professional, I cry for you and your girl. Afterwards, I hug my own girls. Miracles happen, both by medical and unknown causes. Know that I'm thinking of you and sending positive energy your way every time I think about her or I see a "Reese's" candy at the store. I don't know why, but that triggers it for me, I'm sure since Reesa's name is so similar. My daughters do, too. May you find joy in every day with her. Much love. Andrea, Audrey, and Lauren Harrison

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  17. Cardinal Nation is praying for baby Reesa and your entire family.

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  18. Please keep us posted on this website about Baby Reesa. We all care and love her so much.

    Phyllis

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  19. Birthday hugs and kisses for Baby Reesa. you are a beautiful angel

    phyllis

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