Tuesday, September 11, 2012

Missouri Now Testing Newborns for Krabbe

AMAZING NEWS!!! Due to the awareness raised and publicity surrounding Baby Reesa's battle with Krabbe disease, the state of Missouri took notice and will start testing every baby for this horrific disease starting next week! The Brady Alan Cunningham Newborn Reesa-10-Months-105 Screening Act had been passed but was not enforced because Missouri lacked the testing capability. They've decided to use New York's testing lab until they have the capability. Thank you to Rebecca Beckham Ruth for getting the law passed and to Skip Schumaker and Cardinal Nation for raising the awareness needed to have the law enforced. Now babies born in Missouri will have the opportunity of treatment that Baby Reesa and Angel Baby Brady never had!

READ ALL ABOUT IT HERE

6 comments:

  1. Very glad to hear that Missouri will begin testing every baby for this disease. EVERY STATE SHOULD. I just read on one of the links from this web site that legislation passed in New Jersey for this but has not been implemented. Need to find out why.
    God Bless Skip and Cardinal Nation for all their help.
    As always, Hugs and kisses to Baby Reesa

    Phyllis
    Lawrenceville New Jersey

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  2. I just inquired about New Jerseys testing and glad to hear that they are in the process of working on getting the lab set up with personell, equipment and infrastructure. Jamie and Sean, my prayers are with you

    Phyllis
    NJ

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  3. I hope that EVERY state will implement the testing...in the very near future! Reesa is a beautiful little angel and she is blessed to have two awesome parents! My prayers are with you all!!! XO

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  4. If you want to get something done, ask a busy person. With all that Sean and Jamie have on their plates and Skip with his season at a crucial time, they have still had time to save babies lives. I am so proud of the efforts and love extended by them and all who heard and responded. God has truly guided the hands of Reesa's family and friends. It's gratifying.

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  5. The Brady Alan Cunningham Newborn Screening Act had been passed but was not enforced because Missouri lacked the testing capability. They've decided to use New York's testing lab until they have the capability. Thank you to Rebecca Beckham Ruth for getting the law passed and to Skip Schumaker and Cardinal Nation for raising the awareness needed to have the law enforced.

    Lidocaine

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