Tuesday, September 11, 2012

Missouri Now Testing Newborns for Krabbe

AMAZING NEWS!!! Due to the awareness raised and publicity surrounding Baby Reesa's battle with Krabbe disease, the state of Missouri took notice and will start testing every baby for this horrific disease starting next week! The Brady Alan Cunningham Newborn Reesa-10-Months-105 Screening Act had been passed but was not enforced because Missouri lacked the testing capability. They've decided to use New York's testing lab until they have the capability. Thank you to Rebecca Beckham Ruth for getting the law passed and to Skip Schumaker and Cardinal Nation for raising the awareness needed to have the law enforced. Now babies born in Missouri will have the opportunity of treatment that Baby Reesa and Angel Baby Brady never had!

READ ALL ABOUT IT HERE

16 comments:

  1. Very glad to hear that Missouri will begin testing every baby for this disease. EVERY STATE SHOULD. I just read on one of the links from this web site that legislation passed in New Jersey for this but has not been implemented. Need to find out why.
    God Bless Skip and Cardinal Nation for all their help.
    As always, Hugs and kisses to Baby Reesa

    Phyllis
    Lawrenceville New Jersey

    ReplyDelete
  2. I just inquired about New Jerseys testing and glad to hear that they are in the process of working on getting the lab set up with personell, equipment and infrastructure. Jamie and Sean, my prayers are with you

    Phyllis
    NJ

    ReplyDelete
  3. I hope that EVERY state will implement the testing...in the very near future! Reesa is a beautiful little angel and she is blessed to have two awesome parents! My prayers are with you all!!! XO

    ReplyDelete
  4. If you want to get something done, ask a busy person. With all that Sean and Jamie have on their plates and Skip with his season at a crucial time, they have still had time to save babies lives. I am so proud of the efforts and love extended by them and all who heard and responded. God has truly guided the hands of Reesa's family and friends. It's gratifying.

    ReplyDelete
  5. The Brady Alan Cunningham Newborn Screening Act had been passed but was not enforced because Missouri lacked the testing capability. They've decided to use New York's testing lab until they have the capability. Thank you to Rebecca Beckham Ruth for getting the law passed and to Skip Schumaker and Cardinal Nation for raising the awareness needed to have the law enforced.

    Lidocaine

    ReplyDelete
  6. This method is amazing. As well as their team aided us safe the first page search positions along with several key phrases.

    ReplyDelete
  7. First rate to peer the updating of the guidance and solutions through them! Best Auto Body Shop in St. Louis

    ReplyDelete
  8. There are certainly a lot of details like that to take into consideration. That is a great point to bring up. I offer the thoughts above as general inspiration but clearly there are questions like the one you bring up where the most important thing will be working in honest good faith. I don?t know if best practices have emerged around things like that, but I am sure that your job is clearly identified as a fair game. Both boys and girls feel the impact of just a moment’s pleasure, for the rest of their lives.

    Okauctioneers.org
    Information
    Click Here
    Visit Web

    ReplyDelete
  9. Youre so cool! I dont suppose Ive read anything like this before. So nice to find somebody with some original thoughts on this subject. realy thank you for starting this up. this website is something that is needed on the web, someone with a little originality. useful job for bringing something new to the internet!

    Tune.pk
    Information
    Click Here
    Visit Web

    ReplyDelete
  10. Tensile analyzer estimates minute change in measurements to show precise conduct of the material under pressure.tensile strength testing machine

    ReplyDelete
  11. You have a great blog here! would you like to make some invite posts on my blog?

    Visit Web
    Corporacioneg.com
    Information

    ReplyDelete
  12. This is the right blog for anyone who wants to find out about this topic. You realize so much its almost hard to argue with you (not that I actually would want…HaHa). You definitely put a new spin on a topic thats been written about for years. Gretuff, just great!

    Dogforum.co.uk
    Information
    Click Here
    Visit Web

    ReplyDelete