We recently had a planned, 5 night stay at Phoenix Children's Hospital. The main purpose was to have a g-tube placed in Reesa's stomach, along with a couple of other secondary procedures. Krabbe disease has diminished Reesa's ability to suck and swallow which puts her at risk of aspirating on liquids, food, mucus, etc. This development is frustrating because, since the day she was born, Reesa has been a terrific eater and has always loved sucking on her pacifier. Over the last month Reesa has been fed via NG feeding tube which goes in her nose to her stomach. The new g-tube replaces the NG tube and is a more convenient, comfortable and permanent solution for feeding. It is basically a quarter-sized hole through her belly into her stomach where we attach a feeding machine. We also administer medication and even burp her through this hole. For the first few weeks Reesa will be fed continuously via the g-tube at about an ounce/hour for 24 hours. It makes moving around pretty tricky since Reesa is always trailed by a tube, feeding machine/bag and an IV pole. It's amazing how we have gotten used to this crazy routine. You just adapt. Although no hospital visit is fun, Phoenix Children's Hospital is an unbelievable place with wonderful doctors and nurses. They've created an environment that makes hospital visits comfortable for the patients and their families. As usual Baby Reesa was a trooper. No matter how many times she was poked, prodded, awakened, examined...she always had a smile for mommy and daddy at the end of the day!