Friday, March 21, 2014

Reesa Testifies In Front of the Arizona Senate

This week we testified in front of the Arizona Senate Health and Human Services Committee in an effort to get them to pass HB 2491, which would add Krabbe Disease to the newborn screening panel.  We also had the opportunity to meet the Gerlitz family who recently lost their daughter, Parker, to Krabbe.  It was an emotional day but also a postive step towards our goal of having every child born in Arizona tested for this disease.  Treatment options for Krabbe disease are available but early detection is crucial in order to give these children an improved quality of life.  HB 2491 would help insure a timely diagnosis to give every Arizona child the chance at a healthy life and prevent their families from experiencing hopeless heartbreak.

CLICK BELOW TO VIEW OUR TESTIMONY:
Get Microsoft Silverlight

7 comments:

  1. Thank you so much for fighting for New Born Screening. Not only for Reesa, but for all of us. Your family is in my heart, always.

    ReplyDelete
  2. God Bless you for all you are doing to help other families so no one has to experience the heartbreak you and your family are going through. Reesa and your entire family are in my thoughts and prayers always. God Bless you Jamie and Sean

    Phyllis Kownacki
    Lawrenceville NJ

    ReplyDelete
  3. Congratulations on the passing of THE bill! What an amazing accomplishment!

    ReplyDelete
  4. This is a worthy cause everyone who can help should...

    ReplyDelete
  5. Can I just say what a relief to find someone who actually knows what theyre talking about on the internet. You definitely know how to bring an issue to light and make it important. More people need to read this and understand this side of the story. I cant believe youre not more popular because you definitely have the gift.

    Nexxtlab.lu
    Information
    Click Here
    Visit Web

    ReplyDelete
  6. Youre so cool! I dont suppose Ive read anything like this before. So nice to find somebody with some original thoughts on this subject. realy thank you for starting this up. this website is something that is needed on the web, someone with a little originality. useful job for bringing something new to the internet!

    Amorelavita.ru
    Information
    Click Here

    ReplyDelete
  7. After study a few of the blog posts on your website now, and I truly like your way of blogging. I bookmarked it to my bookmark website list and will be checking back soon. Pls check out my web site as well and let me know what you think.

    Click Here
    Visit Web

    ReplyDelete